We are feeling so confirmed and peaceful after our trip to UCLA. To those who prayed for us, thank you! Here’s whats going on:
The doctor we met with was brilliant and kind and gave us his undivided attention. (laughing at Daisy’s knock knock jokes) He affirmed that there would be a potential use for Daisy’s stem cells should the need arise (another relapse) and so we are going through the uncomfortable procedure of collection in a few weeks.
Daisy’s chemo has been pushed back a week to make for an easier stem cell collection. That means fun for us!!! It also means that every time there is a delay it pushes Israel back as well. We are used to the waiting game though and are relishing in the long days of reading books and gardening and putting clothes on the line with the sweetest most creative girl in the world.
But the best part is the affirmation the UCLA doc gave us!! He said the treatment in Israel was absolutely the best way to go for her. He is familiar with what Dr. Slavin does and was so encouraging of our choice to go that route. This was huge for us as it makes so much sense, but to hear it from him was such a boost in confidence for what lies ahead.
Proverbs 16:9 we can make our plans, but the Lord determines our steps
Tomorrow we head to UCLA to talk with a doctor about harvesting stem cells before Israel. Please pray for wisdom as we are unsure of whether to do this yucky procedure. It would be for a slim chance something goes wrong with her treatment in Israel, God forbid. We want to be wise in all decisions as they are not small ones. Thanks friends…
By the way, this is Daisy reading the Old Testament to Nevaeh Abdulla backstage at Reality. Love.
Daisy finally shaved her head today. It’s so bitter sweet.. Bitter because I will miss her hair so much; it’s funny how hair has been so elusive to her for almost half her life. But sweet because Daisy is brave and strong and has built character beyond her years. She is so much more than a pretty face. Every tough milestone, every sacrifice has had an effect on her and makes her lovelier all the time… We are blessed to call her daughter.
Daisy is out of the hospital and climbing her favorite tree today.
We ended up in the hospital today with a fever. And yet she’s styling! Daisy gets IV antibiotics while they culture her blood. If there’s nothing growing in the culture and Daisy is doing well then we go home in 48 hours. Thanks for praying that it’s nothing serious. Love.
Daisy is doing so well. No barfing, feels well, enjoying being mellow. Her counts are rock bottom and she gets daily shots to encourage new blood cells to grow. Ouch! All her hair is still there but any day now…
Love to all and thanks for praying for our precious girl.
Daisy is leaving the hospital after 5 days of chemo. A couple of weeks of recovery now, then more chemo, then treatment in Israel if it all works out. She is happy and doing well. Thank you for your prayers and support!
We played a trick on the nurses with fake barf!
Daisy practicing her plié. Still doing great on Day 3!
