Hi friends and prayer warriors!  We have been experiencing the joy and peace of the Lord and it has been beautiful and amazing! Additionally, Daisy has been feeling great and happy!  We started “school” this week (homeschool) and so far we’re having a great time.  The creative juices are flowing.  Isaiah created a whole scavenger hunt for Daisy and her best friend starting with a challenge from C3PO and ending with a treasure!  He’s the best brother in the whole world.  The joy is in all areas of our hearts right now, and as we have Daisy’s scan coming up on Friday, we are feeling pretty optimistic about it.  We are confident in what God is able to do and feeling hopeful for the best, but we’re also prepared to trust Him with the worst.  We go to the hospital at 11am to have Daisy drink a solution that gives the scan good definition, she gets the scan (goes in the spaceship) at 12:30, and we should have the results by 2:30 or 3:00.  When we get those Britt will tweet.  You can follow him on twitter here and it will also be posted on facebook.

You can pray for:

• best possible results on scan
• us to handle the news in a way that trusts in God’s goodness
• Daisy and Isaiah to continue to feel great emotionally, spiritually, and physically

Also, last week, Daisy had a song written for her by a band called Caspar Babypants, and it’s the coolest song ever!  This awesome guy totally captured Daisy’s personality and put it to music. It’s a super fun crazy tune, so rock out with us!  

babypantsmusic.com 

Thank you all so much for all your prayers and support.  We feel so thankful to have so many amazing people on their knees for Daisy and we realize it’s a huge gift.  

Psalm 22:5,24

To You they cried out and were delivered;

In You they trusted and were not disappointed. 

For He has not despised nor abhorred the affliction of the afflicted;

Nor has He hidden His face from him;

But when he cried to Him for help, He heard. 

Mom’s gonna kill me!

I’m taking Daisy out for a date tonight and she got all dressed up for me!!!

Super cute kids! Daisy with her 973rd new beanie and a mouthful of food. Isaiah looking like the cool surfer he is.

Daisy is wearing her kangaroo ears and made herself a bread man for dinner!!

What an epic week Daisy’s having! I want everyone to know this, Daisy has so much energy, hasn’t barfed or complained of feeling pukey, no bone pain, just amazing, creative, feisty fun and love coming from her! We truly believe this is because of the power of Jesus through prayer and we are so thankful. When your baby has cancer, at least the days can still be fun and worry not be the seasoning of your days… Yesterday she built a pirate ship in her room, complete with a treasure chest full of midnight pirate snacks, sleeping bag (she spent the night in it) and lots of “aaargh”-ing. She deeply contemplated getting a monkey for a pet because that seems very pirate-y and the added bonus that “pet monkeys don’t fling poo like wild monkeys”. I considered her reasoning well thought out, but alas, my answer was no.

Here’s how we’re looking for the next couple of weeks:

We have big choices to make, and most of those big choices hinge on the results of her CT scan, scheduled for Friday September 3rd. We need wisdom, discernment, and confidence in our decisions. When you relapse, your treatment isn’t as cut and dried as the first time around. We are educating ourselves on our options as much as possible, praying and thinking our way through all of it. Pray that we make good choices for her.

If her CT shows the tumor has shrunk enough to resect, that thing is outta here! We will then have the tumor cryopreserved and sent to Israel to have a vaccine made from it which she will get when her treatment in LA ends. If her CT shows no shrinkage, they pull out even bigger Chemo guns. We are expecting shrinkage, praying for it, but this is what happens if that bugger of a tumor won’t budge. So, we’ll cross that bridge IF we come to it.

I have to say that although we know that her prognosis is poor, it has actually given me more hope. My hope in the last year has found many targets, a 90% cure rate the first time around, good health care, a Wilm’s relapse specialist, and Israeli technologically advanced medicie, but the bullseye is my God. He heals the lame, gives sight to the blind, raises the dead. He gives, He can take away, but He alone is where our hope lies. It’s a total relief, to be honest.

I just finished reading “Chasing the Dragon” by Jackie Pullinger, reminding me that the same Jesus who touched so many so long ago touches so many today. Page after page, I read about precious hurting people miraculously healed of so many afflictions. People who had made a mess of their lives, imperfect, selfish, sinful people. Kind of like me. He is so able… I’ve also read of Job, who endured much earthly pain, all while not understanding the reason or purpose. I don’t understand either…. Who can know the mind of God? He is so much bigger, so much more powerful, so much more… gnarly.. than I can even fathom. That’s whose hands Daisy’s life is in. We deserve nothing from Him, yet receive so much. Wow…

Off on an adventure with Daisy!

Britt is spending some one-on-one time with Daisy Love this morning reading the Gospels together & talking about healing.

Daisy is home and doing exceptionally well. We are all praising the Lord. He’s so kind.